Introduction
This learning pathway
This pathway is for people living with dementia, carers, and community members who are new to dementia research. However, it may also be useful if you already have some experience.
In this section, we explain what 'involvement' is, share simple resources to help you understand it, and introduce key terms.
What is research involvement?
This is when people who have lived with a condition, or cared for someone with it, work together with researchers. They share what they know and what matters to them. Together, they spot problems, think about new ideas, and decide what the research should focus on.
To learn more about what research, and research involvement are, check out Dementia Australia's short videos:
It involves researchers:
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Talking openly and honestly about the research and what has already been decided
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Listening to peoples' needs, concerns, and ideas
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Making decisions and taking action together, where possible.
Why it matters:
Strong involvement can help:
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Make research more relevant
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Build trust in organisations
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Create outcomes that last because they are shaped by those they impact.
